Hello, friends. I wrote this post the week that we came home from the hospital with Big Brother after his surgery. I didn’t realize that his recovery was going to require more than a month’s sabbatical from life and I never got to finish it. Some of it might be outdated now, but I wanted …
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Maybe you didn’t notice that I only got one post out in December and only two in November. I noticed. I started a post a long time ago about how the first thing that disappears from your life when you have a special child is time. Maybe someday I’ll finish that one. When I have …
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Water is one of the most imperative human needs. It’s also one of the most deadly forces in the world. We’ve seen it a lot in the news lately: the devastating effects of hurricanes (stateside) and for those of you who do global news (I don’t) typhoons and tsunamis make me grateful to live where …
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This summer we took a trip through a house of mirrors. Actually, we took several trips through. We struggled a bit the first time. It’s very disorienting. It turns out, if we had just let Yoshi go and followed him, we all would have been fine. The second (and subsequent) trips through, I wasn’t as …
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This week, I’m writing a rebuttal to my own post (So Just What IS Wrong with Your Son?). I got a lot feedback last week, it just wasn’t what I expected. I really appreciate the love and support, but I think my message was misunderstood. First, yes. I have actually been asked that question plenty …
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It’s a question I get a lot and it has a complicated answer. I usually just say autism and leave it at that. If I’m feeling generous I might say high functioning autism or even Aspergers. It’s the easiest answer, it explains why he seems “weird” to you, even if it isn’t the whole answer. …
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It’s become a cute, almost fashionable thing to say that “being busy is a choice.” It’s my new favorite thing to hate. Maybe for some people busy is a choice. I envy those people. If I actually had a choice in the matter I would choose to not be busy. I promise. Ask anyone who …
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One day someone is going to ask me how I’m doing and I’m going to say, “Great!” and mean it. I say it all the time. Fine, okay, good, great—they’re all a lie. That’s what you do when someone asks in conversation. You say, “Fine,” and you move on. It’s polite. They’re only asking to …
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This is not the kind of life that you measure in big victories. I have two children, one that is walking a more typical road and one that is… not. I know what it is like to celebrate milestones—and ache when they are missed. If we lived our “second” life waiting to meet the normal …
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We’re all guilty of it. We compare ourselves to everyone, our children to their peers, our spouses to our friends’ spouses. We measure our houses, our cars, our jobs against others’. Everyone gets sucked into “Keeping Up with the Joneses” sometimes. It’s an especially dangerous game to play when you have a high functioning autistic …
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